Published:
9:00 AM July 19, 2022
A loving mum from Hadleigh is raising funds to provide her disabled daughter with a ‘lifechanging’ accessible garden space.
14-year-old Ronni has CTNNB1, a birth chromosome defect which affects her muscles and causes mobility regression.
She is one of only 300 people in the world with this condition and is unlikely to ever be able to walk independently.
14-year-old Ronni is one of only 300 people in the world with birth chromosome defect CTNNB1.
– Credit: Laura Arvanitidou
Ronni was diagnosed in February and uses electric and manual wheelchairs, a walking frame and wears splints on her legs.
Therefore, movement is of the utmost importance in order to halt the regression of her muscles and preserve Ronni’s mobility.
Her mother Laura Arvanitidou said: “Ronni loves spending time at home being a typical teenager, but adores the outdoors. Having her own outside space would be lifechanging for her.”
Venturing outside of their home can be a challenge as Ronni can’t be exposed to loud noises and uncertain…
